Letters
Letter from Mumbai
BRAIN DEATH: SOME CONUNDRUMS
The diagnosis
Over the 13 years since it was passed, we
continue to face practical problems when a patient is proven
to be dead by the tests listed under the Transplantation of
Human Organs Act, 1994. Readers of this journal may wish to
contribute their own experiences and suggestions after reading
of our difficulties.
The vast majority of Indians, including the
literate sections, remain either ignorant of this Act and its
provisions or have a very fuzzy notion of it. This underscores
the need for continued efforts at broadcasting the rationale
for promulgating the Act and explaining its various sections.
We continue to face relatives who, one eye on the oscilloscope
tracing the electrical patterns generated by the heartbeat,
refuse to accept that their patient is dead. Presence of the
PQRST complex is, in their minds, proof positive of life. They
go on to state that we must continue doing all that is humanly
possible to save their patient.
The concept that the diagnosis of death no
more rests only on the permanent cessation of the actions of
the heart needs to be disseminated. Evidence of extensive,
permanent, irreversible damage to the brainstem as adequate
and legally valid ground for the diagnosis of death must gain
general acceptance. Over time, we must shed the word ‘brain’
in the term ‘brain dead’. We shall thus spare untold agony,
suspense and expense to the families of patients who have
died.
In doing so we shall also help patients in
desperate need for intensive care that could save their lives.
As matters stand, the dead patient remains on ventilator,
intravenous drips and a variety of drugs. As long as the body
remains in the intensive care unit, no other patient can be
brought in to use these life-saving facilities wasted on it.
Conveying the diagnosis to the family
The consultant attending to the patient is
the ideal conveyor of the diagnosis to the family. Seniority,
experience and authority facilitate transmission of the sad
fact in a humane manner and help the family accept their loss.
Unfortunately, the consultant is often busy elsewhere when the
diagnosis is made and it falls upon the resident doctor to
explain the changed circumstances to the family. It is often
difficult for this junior doctor to put forth clearly the
concept of brain death and answer questions from family
members mesmerized by the electrocardiogram on the screen.
Some institutions are trying out a
different tactic. As soon as brain death is suspected, the
medical social worker is alerted, as the formal diagnosis will
take at least 6 hours. During this period, using the skills
learnt in training in social work, she initiates a dialogue
with the family after introducing herself. She discusses the
gravity of illness and offers help in any form required by the
family. She keeps the family posted with changes occurring as
the tests for brain death are carried out and as the second
series of tests is awaited. After the final diagnosis is made,
she conveys it to the family. Since she has built up a rapport
with the family, it is less difficult for her to broach the
topic of organ donation, emphasizing that the family is under
no obligation to make such a donation. The family often finds it easier to discuss pros and cons of
organ donation with her and make a decision.
Making the diagnosis when there is persistent metabolic
abnormality
Since the criteria for the diagnosis of
brain death listed in the Act assume that there is no
significant metabolic abnormality, what is to be done when
there is persistent metabolic abnormality? Adhering to the
letter of the Act will mean losing several potential organ
donations.
A suggestion has been put forth that
contrast CT scan be used to study cerebral circulation. If
this shows total absence of entrance of contrast into the
brain, can we make the diagnosis and take follow up action?
Red-tape frustrates organ donation
An accident victim admitted to hospital is
deemed ‘a medico-legal case’ and details on the patient must
be provided to the relevant police station at once. After the
police have registered such a patient, it becomes mandatory to
inform them on certifying death. No action can be taken on the
body till the police decide on whether or not an autopsy is
required.
We have observed delays of up to 7 hours
from the time we inform the police station to the time we are
told about whether or not an autopsy is required. Even when
relatives have agreed to donate organs for transplantation
after brain death and the need for urgent action is explained
to the police, hours elapse ere we are told whether or not we
can proceed to harvest organs. As we await, the utility of the
organs is downgraded and there are occasions when we have to
offer our apologies to the family of the patient that despite
their permission, we cannot utilize the organs to help other
patients.
Taking organs AFTER the heart has stopped
This is becoming increasingly difficult.
Unlike the brain dead patient, where a minimum of 6 hours is
available for discussion with the family and setting into
motion all that is needed to harvest and transplant organs,
here we have very little time. Under the circumstances,
explanation to relatives, the time taken by them for making
the decision and overcoming police and other formalities
usually renders the organs unusable.
AT WHAT AGE SHOULD SURGEONS BE FORCED TO STOP OPERATING IN
PRIVATE HOSPITALS?
At first sight this question sounds
arrogant. Surely, the surgeon will stop operating as soon as
he feels that he can no more do justice to the needs of his
patients. Who, more than the surgeon himself, is aware of the
need for the eye of an eagle, the heart of a lion and the hand
of a lady? As the lens clouds, retina degenerates, heart
departs from its natural rhythm and races wildly on mild
stimulation and the hand trembles, the surgeon will gracefully
bow and walk away from the operation table where he had ruled
and performed for so long.
Will he, really?
Here are some sentiments that I have heard
expressed by surgeons who have many years ago passed the
Psalmist’s three score years and ten:
‘As long as I can help my patients, I will
continue to operate.’
‘I have a keen mind. I am interested in
recent advances and keep pace with them. I enjoy the
challenges thrown up by surgically treatable disease. I have
not lost my stamina. Why should I stop operating?’
‘I have a waiting list of patients for
surgery that extends over the next 3 months. Should I
disappoint all these persons who have faith in my abilities?’
‘What? I, retire? Are you crazy? With my
experience and wisdom I am far better than many of my surgical
colleagues half my age!’
A search through the journals shows that unless
compulsorily retired or superannuated by hospital rules on
reaching a particular age, most surgeons continue well past
their prime, undeterred by the fact that their peak
performances were in the distant past. Well-administered
hospitals constantly monitor the outcome of all surgical
procedures and are thus able to focus on the ageing surgeon
whose morbidity and mortality statistics are worse than those of his
colleagues and take action to prevent harm to his patients.
Unfortunately, few hospitals in India’s
private sector fall into this category. Most such hospitals
would find it very difficult to comment adversely on senior
surgeons who attract large numbers of patients to the
financial benefit of the hospital. In the absence of a
continuous surgical audit carried out impartially and without
excluding any surgeon, howsoever eminent, how are failing
ageing surgeons to be weeded out?
A commentator abroad noted that when asked,
most surgeons preferred a peer review system to determine
their competency, rather than an upper age limit for
practising. Would a jury of peers who will decide whether the
quality of surgery merits continuation or dismissal be
acceptable in India? Would senior surgeons accept the verdict
of such a jury, where the average age of its members is 50
years?
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